Routine
by BrianRobinson
 Kaleidoscopic
May 21, 2012 | 3129 views |  0 comments | 8 8 recommendations | email to a friend | print | permalink
     Some autistic people are locked into strict routines.  There could be different reasons for this, from always knowing what comes next and therefore being prepared for it, to needing that locked order to get through the day, to a simple preference of having things nailed down and not loose to minimize any surprises which would be tough.  Going away from those routines can cause anything from slight discomfort to meltdowns.
     We're lucky that Xan can handle changes and differences.  Things do tend to go wrong, accidents happen, and I can't tell you how many times even vague plans of ours (wanna try to grab a bite to eat one day this week, say) have run aground on the rocky shoals of life getting its own way.  I suppose we COULD get into a minute-by-minute plan if we really had to, but I bet something would crop up to destroy it quickly.
     In terms of scheduling, we are free from routines.  But we are not free from routine things.
     Like Xan fighting sleep.  We put him to bed early most nights, reasoning if it takes him four hours to go to sleep. starting at seven equals an eleven o'clock bedtime - getting him up around six means seven hours sleep.  Not too bad.  But if we put him to bed at eleven and he finally wears down at three and then we get him up at six, that's not too good.  At the least he will be cranky as heck and not wanting to do things for himself which will make him mad when we won't help, and he may fall asleep during the day.  Like many kids, one hour of a nap in the afternoon seems to recharge him for the day, which means another late night.
     And there's being around to help Xander do things.  Here we have to be very careful we don't get into habit of doing things for him but make him do as much as the task as he an himself.  But we're usually around to help him if he really needs.  The flip side of this routine is we don't get much time to ourselves, always keeping an eye and ear out to see if he needs help.
     Of course, there's the usual guessing game of what he says.  A lot of times when he IS asking for something using his words, he talks so fast we can only pick out a few words.  And he still has trouble with similar sounds - b,d,p, etc.  'Cheese Toast' in his regular voice and speed sounds a lot like 'Cheetos'.  Did he say 'Party Time' or 'potty time'?  One's a DVD he likes, one is a sign that he's got some problems going on.  So that's pretty regular for us.
     One thing is sure, though - all of his routines make him special.  And some routine things for others are more than special for us.
     We don't take anything for granted, and little steps he makes as he grows take on magical and fantastic colors to us.  He's started being very choosy about what he wears.  I lay out some clothes for him to change into after school, and about twice per week he puts back what I choose and grabs something else.  That's probably pretty common for kids, but for us it was huge.  Independent thought and choice, getting things himself instead of making us do it, picking his particular wants himself...all a special move.
     He's very vocal about what music he wants to listen to.  Lucero's "I Can't Stand To Leave You" is a huge favorite of his, as is Avenged Sevenfold's "Bat Country" - and those are kinda different songs.  It's so great to see him make choices, ask for those choices, and rock back and forth in the car as his music plays.  Every parent has seen this routine...but for us it's never routine.
     Him being able to handle what the world throws at him, for the most part, is also fantastical to us.  There are days when we're happy and proud of him for not doing anything that caused troubles, like when we put Casper to sleep, when the pipe broke, when I had my knee surgery, all of them unscheduled and stressful.  But he handled them all mostly well, which was a huge help for us.  Others may expect that from their kids as a matter of course. 
     And so many more things that others may take for granted.
     Our routine is anything but, and some routine acts of his are miraculous.  
    
    
Mother
by BrianRobinson
 Kaleidoscopic
May 13, 2012 | 2021 views |  0 comments | 9 9 recommendations | email to a friend | print | permalink
     Happy Mother's Day.

     Xan is very lucky to have Tracy as a mom.  Even in his most challenging times, by issues or attitude, she loves him unreservedly and completely.  While understanding his problems and struggles, she never lets him settle for less than his best - much as he tries to convince her too.  When exhausted after a long day at work, she always puts him to bed so they can have some time to themselves.  Even when sick - which she is today, continuing our trend of special days equaling problems - she takes care of Xan.  She always sets a great example of parenthood, giving Xan a support system unrivaled and a hard to reach example for me to follow.

     Even with all the extra struggles of Xan's autism and nonverbalness, she manages to be caring and patient.  It's hard to know what he thinks at times, but it's obvious he loves mommy and I think he knows he's lucky to have her.

     If for no other reason than to give him a break from me.

     Happy Mother's Day, Tracy.  You are an inspiration.  Even though Xan doesn't say it, he knows it.
Loss
by BrianRobinson
 Kaleidoscopic
May 07, 2012 | 1600 views |  0 comments | 17 17 recommendations | email to a friend | print | permalink
     We had to put one of our cats to sleep Sunday.  He was seventeen years old - been with us for almost all of our married life.  It hurt.  We treat our cats like family, and to lose one is painful.
     Xan was with us at the vet's when it happened, in the room with us.  Babysitting isn't really an option, and I think he wanted to be there to say his goodbyes in his own way.  He gave Casper a little pet, and showing some empathy unusual in autistics, kissed mommy when she cried.  He did the same thing when our first cat died too - he understood she was hurting and wanted to help her.
     Don't think I wasn't crying, either, but as we all know, he prefers mommy and wants to make her happy.
     It's hard to know how autistic people understood death.  They see someone isn't there anymore, but do understand the sadness and the loss?
     If you're more than casually interested in autism, you've probably heard the name Carly Fleischmann.  If not, she's an autistic girl (teenager, I think) who was uncommunicative, but then started to type out thoughts and feelings in a deep and meaningful way.  In addition to the inspiration of her even being able to communicate, her writing is light-years above many adults making a living doing the same.  She is also able to relate how she feels and reacts to things that help other autistics and parents of autistics to perhaps get an idea of what they go through.
     (Perhaps - the saying is, if you've met one autistic person - you've met one autistic person)
     By a sad coincidence, she recently did a post on Facebook detailing how she's dealing with the death of a friend, and she said what we all feel when a loved one dies - she's sad, and it's not fair when some die.  A universal constant.  I've posted before of how Xan reacted at my mom's funeral, where he definitely showed his anguish.  
     Loss is change.  It goes from having someone around to them being gone.  But loss is also part of love - you have to care about someone to hurt when they hurt, or when you have to say goodbye.  And another part of love is strength to lose someone.
     We had to decide that Casper was suffering, and be strong enough to let him go instead of keeping him here so we didn't have to say goodbye.  It isn't fair, but it is.
     But loss doesn't have to be that drastic.  Xander is, little by little, getting more independent.  We still don't know if he could handle being by himself, but he is able to be more trusted to do some things now.  It isn't always easy but we try to make him do more - which always means we're losing him, little by little, with its benefits and sadness.
     It would be easier, sometimes, to just go along.  Do it for him, take the responsibility out of his hands.  Sometimes we do.  But more often than not, we have the strength to make him do something, to make him lose that dependency and get him stronger and pay for that change  in yells, fits. arguments, complaints, stress and troubles.
     Parents are used to this, making their child their own person and able to handle themselves so they can go out in the world and make their own way.  They suffer and have to be strong, all for the ultimate goal of losing their children from their home.  We're no different in that goal, but our particular trials and methods are much different.
     Saying goodbye, in all its forms, takes strength.   It hurts, and a lot of times all you can say, like Ms Carly did, is it isn't fair to have to suffer that way, either from being the target of anger for making someone do something on his own to letting a beloved cat going to its final sleep rest its head on your hand as he slips away.
     Loss is part of love, and the final payment for all those smiles and laughs you get from time spent with a loved one.
     RIP Casper. 
     
Normal
by BrianRobinson
 Kaleidoscopic
Apr 30, 2012 | 1566 views |  0 comments | 18 18 recommendations | email to a friend | print | permalink
     The Oxford walk is over.  It was a bit more hectic than last year, and a couple of things went wrong, but the turnout was good and people seemed to have a good time.  Thanks to everyone who walked, special thanks to everyone who helped, and praise beyond words to my wife for setting this whole thing up and dedicating much of her time and efforts to it.  Now, life can get back to 'normal'.
     Along with the walk, Autism Awareness month is almost done.  Last day is today.  For many of you, this means one more charitable memory jogger is in the past and another to come.  Your life can get back to normal, if indeed it was even affected.
     Our comparative definitions of normal would be radically different.
     Xan woke up laughing like a loon at 4:15 this morning.  I have no idea why.  I've blogged many times of the mystery and frustration of his lack of communication - this is our normal.  But another part of that is his spontaneous joy over something I don't recognize.  There are certain catchphrases that will send him howling in glee - not all of them from kid's stuff.  Mystery Science Theater 3000 (one of our faves) gives him a lot of things to laugh about, things I wouldn't have guessed he would find funny or, really, understand.  (I mean, what ten year old really gets the humor of one character saying "We're all doomed!" and a puppet firing back "Oh, he's a Calvinist!")  Which could just be that what I find funny in something is not what he finds funny - something beyond what I get.
     I don't think in these cases it's something sensory - like, on the flip side, the way echoes will bother him and make him cover his ears.  (I once read that autistic people get signals from their different sides of the brain at different speeds - think about that and then add an echo in there)  I believe in some cases the humor is the same for both of us.  Other times, maybe it's a particular sound or inflection in the line, or maybe something in the background I don't notice but what makes all the difference to him that comes back to him when he hears the words again.  Or, perhaps one of the words reminds him of something else that made him laugh - the code words I've referred to in other posts.  Kinda like how one story, not that funny, can remind you of something else and make you laugh anyway. 
      Xan may have woken up and seen the shadows dancing on the wall, which reminded him of, maybe, Shadow from Bear in the Big Blue House.  Or it could have made him think of chasing daddy's shadow when he was younger.  The way they moved may have triggered happiness for some odd reason - the merging and coming apart, the odd and free formed shapes, the way they would blend into the dark around them and come back again, like water splashing in a constantly rotating waterfall.
      Sometimes it's very, VERY hard to see beyond the things that cause him troubles.  Since we want to fix what hurts him or makes him upset, those things are naturally what takes precedence and moves to the front of the line.  And, since a meltdown commands a lot more attention than laughing, they also stick in the memory longer, sometimes along with bruises.
     That is part of our normal now.
     What is also part of our normal is being amazed at how normal things to Xander can be wondrous, extraordinary, amazing, hilarious, hypnotizing, engrossing and full of more than what I can see or imagine.  His different normality.
     Our normal can be tough, but his normal can be fantastic.
Walk
by BrianRobinson
 Kaleidoscopic
Apr 26, 2012 | 1290 views |  0 comments | 8 8 recommendations | email to a friend | print | permalink
     Saturday, we have the walk!  Oxford Stadium, 8 AM to noon.  Come out and see us and support the Autism Society of Alabama.
     It's a 3K walk...even >I< can handle that.  (I think)  You can still sign up at this site, or when you come to the stadium. 
    We're going to have soft drinks and pizza for lunch, a bounce house for the kids, and other stuff too.  And once this gets done I may have some more time to get back on blogging. 
     Hope to see you there.

Today's Events
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Wednesday, 19, 2013
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Pond Spring- The Gener... 3:50 PM
Oxford Farmers market 12:00 AM to 11:59 PM
Join us for the kick-off of Oxford's first...
Oxford Farmers market 12:00 AM to 11:59 PM
Join us for the kick-off of Oxford's first...
Hip Hop Hope Vacation ... 12:00 AM to 11:59 PM
$0 The Living by Faith Ministry will host Vac...
Linda Jones likes to entertain with husband’s help
by Margaret Anderson
Special to The Star
Jun 19, 2013 | 107 views |  0 comments | 4 4 recommendations | email to a friend | print
Linda Jones looks forward to Wednesdays. That’s her off-day at Stinson Howard Jewelers in Piedmont, which gives her an opportunity to cook for her entire family. “All of them come,” she said. “I’ve been doing this for 20 years or longer.” By “everybody” Linda means her husband, Roy, their sons, Darwin, Brian and Barry and their families, which includes eight grandsons and two granddaughters, as well as her sisters, other family members and friends. Linda said it’s a good thing she likes to cook, because that’s not the only time she cooks a lot. “Everybody comes to our house about once a month, and we play music,” she said. “There’s usually about 70 to 75 people here. Roy helps me cook and everybody brings a dish. We play gospel, country, rockabilly, it makes no difference, if we like it we play it, and we have a ball. And there’s no alcohol.” The Jones home has been the site for this get together for about 40 years. Linda said she’s no drummer, but she does like to play the snare drum. “I like keeping time with them,” she said. Roy plays lead guitar, their oldest son, Darwin, plays bass, and Michelle Hudson sings. Harold Parris is on steel guitar and Rodney McReynolds, Brian Carroll and Dan Freeman play guitar. Linda said that all the guitar players also sing. For many years, Linda and Roy made syrup at Nances Creek Community Center. That led them to create trade there which is the first Saturday of the month June through October. Linda has worked in jewelry stores for the past 30 years. She spent the first 20 at the old DuBar’s store. It was bought by Stinson Howard who built a new store and asked Linda to stay on as manager. She’s been there 10 years. “Sometimes I’ll ask my boss (Sam Stinson) if he’s ready for me to retire and he’ll say no,” said Linda, admitting that she doesn’t want to retire. “I love all of it,” she said. “I love meeting people and selling. I’m never out and I’m never late. My boss said he’s going to put on my tombstone ‘old reliable’. They’ve just turned the store over to me more or less. I pay my own self. I write my own check and I write Brandon’s check. I tell people that selling, cooking and eating are all I’ve ever done.” Brandon Stinson repairs jewelry. Linda’s sisters, Olene Penny and Thyra Smith take turns working on Saturdays. Linda was born in Jacksonville and moved to Nances Creek when she was a baby. She’s lived there ever since. Her parents are the late Mitchell and Emma (Smith) Doss. She graduated from White Plains High School. She and Roy met at the Pig in the Basket, a small café that was torn down years ago, that was located in front of Piedmont Hospital. “Back then, the kids would ride around and go to the Pig in the Basket, then they’d go to the Coffee Cup,” she said. “It was back and forth, back and forth. You’d blow your horn and they’d bring your tray and hook it on the window. They were good times.” She and Roy married in 1961 The preacher who married them had cut pulpwood that day. When he came home, he had a bath before marrying them, and Linda remembers that his hair was still wet. Roy’s friend Larry Hill, who lived in Ellisville as did Roy, went with them. Linda said before they could start their honeymoon, they had to take Larry back to his home in Ellisville. “People spend $50,000 on weddings, and they don’t last,” she said. “We didn’t spent anything, and we’ll be married 52 years on Oct. 13. We got married on Friday the 13th.” Linda and Roy renewed their vows on their 50th anniversary. “We had a big celebration at Terrapin Creek Lodge” said Linda. “Our good friend Alice Martin (probate judge) married us. Our kids and grandkids were there and we had a lot of friends.” Roy is retired and spends a lot of his time tending to his 25 beehives. He was a self-employed cement finisher. Linda said her husband is a good cook, and she appreciates the fact that when she gets home from work, he often has her plate waiting for her. She likes to prepare Instant Miracle Rolls, Peanut Butter Fudge, Pecan Pie Cake and Tater Tot Casserole. Contact Margaret at pollya922@gmail.com. Recipes Instant Miracle Rolls 5 c. self rising flour
¼ c. sugar
1 scant t. soda
2 c. warm buttermilk
3 pkg. yeast
1 c. cooking oil Mix together first three ingredients. Then mix the rest and let sit for 20 minutes. Cut out and bake at 400 degrees. Peanut Butter Fudge 2 c. sugar
1/ c. Pet Milk
1 stick margarine
15 oz. peanut butter
1 t. vanilla Cook first three ingredients until hard ball. Then stir in peanut butter and vanilla. Beat together and pour into buttered Pyrex dish. Pecan Pie Cake 1 ½ c self rising flour
1 c. white sugar
1 c. packed brown sugar
2 c chopped pecans
4 eggs, beaten
1 c. cooking oil
1 t. vanilla Mix together. Pour into long sprayed Pyrex dish. Bake at 350 degrees until lightly browned. Tater Tot Casserole Large pack ground chuck
Bag of tater tots
1 c. cream of chicken soup (with a little water)
4 T. soy sauce Cook ground chuck. Drain grease. Put back into skillet. Add cream of chicken soup and soy sauce. Pour into greased Pyrex dish and add tater tots to top. Bake until tater tots are brown.
Summer reading going strong
Jun 19, 2013 | 22 views |  0 comments | 4 4 recommendations | email to a friend | print
With over 180 children and young adults signed up for the Program, Summer Reading at Piedmont Public Library is busier than ever! The Library has many programs for the kids to enjoy. Last week, the “Summer Sprouts” traveled to The Learning Farm and made their own ice cream in a bag, followed by a hands-on lesson about wheat and how it is made into all kinds of pasta. On Thursday, guest reader Ashley Williams read to the kids about bugs and where they live. Then, they were able to color their own garden and fill it with “fingerprint bugs” using finger paints. Friday brought fun with The Imagination Place from Gadsden. They brought balls of clay for the kids to make “pinch pots” to take home and decorate to grow their own plants in. The fun continues at the Library every week. The Learning Farm takes place every Tuesday, story time and crafts every Thursday, and this Friday, Bill Haley from The Tennessee Aquarium will present a live animal show. Stop by the Library or call for more information, and don’t forget to check the Library out on Facebook to see all the great pictures from the program!
Piedmont City Schools offer Career Technical Education classes
Jun 19, 2013 | 28 views |  0 comments | 4 4 recommendations | email to a friend | print
Alabama’s Career and Technical Education program is designed to empower students to meet the daily challenges of the twenty-first century with the work-readiness skills needed for success. This program provides a curriculum wherein students are actively engaged in learning through career-oriented activities. National affiliated student organizations such as FBLA and FFA are integral, co-curricular components of each career and technical education course. These organizations serve as a means to enhance classroom instruction while helping students develop leadership abilities, expand workplace-readiness skills and broaden opportunities for personal and professional growth. The focus is to help students develop an understanding of all aspects of industry and technology in the program area while learning teamwork and leadership skills. Piedmont City Schools currently offer Career and Technical Education classes at the middle and high school level. Piedmont High School offers classes through a 2-year rotation. During the 2013-2014 school year students will have the opportunity to take Agriscience, Construction Framing, Introduction to Metal Fabrication and Horticulture. In 2014-2015 students may choose to take Agriscience, Construction Finishing, Introduction to MIG Welding and Horticulture. • Agriscience is a course that provides students with a general overview of Agriculture, Food and Natural Resources. • Construction Framing is designed to provide students with an understanding of the framing phase of a structure, including framing components. • Construction Finishing is designed to facilitate student understanding of the finishing phase of a structure. • Introduction to Metal Fabrication provides students with opportunities to examine safety and technical information in metal fabrication and to participate in hands-on activities in the laboratory. • Horticulture includes career opportunities, safety, plant physiology, growing media, greenhouse facilities, greenhouse and nursery crop production, plant identification and classification, pest management, hydroponics and vegetable gardening, and technological applications. • Introduction to MIG welding provides students with opportunities to examine safety and technical information in metal fabrication and participate in hands-on activities in the laboratory. The middle school offers Computer Essentials for eighth grade students who want to master basic skills in the areas of word processing, database management, spreadsheet applications, multimedia presentations, and Internet research. The Piedmont City School System does not discriminate on the basis of race, color, national origin, sex, disability, or age in its programs and provides equal access to affiliated student organizations. In addition, arrangements can be made to ensure that the lack of English language proficiency is not a barrier to admission or participation. Inquiries regarding nondiscrimination policies should be directed to: Mike Hayes, Title II Coordinator 502 Hood Street West Piedmont, AL 36272 256-447-8831 Debra Ledbetter, 504 Coordinator 504 Hood Street Piedmont, AL 36272 256-447-7483 Revonda Pruitt, Title IX Coordinator 504 Hood Street Piedmont, AL 36272 256-447-7483 For more information contact Mark Mitchell at mmitchell@piedmont.k12.al.us regarding high school classes and Jennie Baer at jbaer@piedmont.k12.al.us.
At Fruithurst Elementary School the winners included left to right, Jared Hatchett, honorable mention; Lillie Sadler, third-place; Abby Wilson, second-place; Chloe Roberts, first-place and Donna Riddle, UDC member. Photo: Special to The Star
At Fruithurst Elementary School the winners included left to right, Jared Hatchett, honorable mention; Lillie Sadler, third-place; Abby Wilson, second-place; Chloe Roberts, first-place and Donna Riddle, UDC member. Photo: Special to The Star
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At Pleasant Grove Elementary School the winners included left to right, Abby Morris, first-place; Rustin Roberts, second-place; Annie Brown, third-place and Clay Spurlin, honorable mention. Photo: Special to The Star
At Pleasant Grove Elementary School the winners included left to right, Abby Morris, first-place; Rustin Roberts, second-place; Annie Brown, third-place and Clay Spurlin, honorable mention. Photo: Special to The Star
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